The powerful story of Hafiz who lost his son with DMD last year: resilience, strength, love in his words and eyes.
Fernanda Ferreira, physiotherapist from Brazil, explains why it’s important to train patients and families, and how a good respiratory management can really make a difference for the quality of life of Duchenne young adults.
Josephine from Chile shares her experience of her family and how they are dealing with Duchenne muscular dystrophy.
Elizabeth Vroom, chair of the World Duchenne Organization and mother of a person affected by Duchenne muscular dystrophy, shares the experience on how the global Duchenne community is facing the COVID-19 emergency.
Being a mother is the greatest demonstration of the generosity of the world. Josephine, from Chile, shares her experience about being a mother, this powerful and beautiful gift that a woman can live.
Communication and awareness on Duchenne and Becker are important to inform, to involve the society and to achieve dreams and goals. In this video, Khawla shares her experience.
Social activities, collaboration are essential to make a difference for Duchenne and Becker muscular dystrophy. Scolar, from Kenya, shares her experience in helping the local community for a better future.
Justus and Paulien
Justus and Paulien are great friends, and they lived a lot of powerful experiences together. In the video they tell their story: independent life, university, education, travels and friendship. Duchenne muscular dystrophy is part of this life but has not influenced the power of life.